The Society for Mucopolysaccharide Diseases (the MPS Society) is the only UK charity providing support to individuals affected by MPS and related Lysosomal Storage Diseases, their families, carers and professionals.
Mucopolysaccharide (MPS) and related diseases are Lysosomal Storage Diseases.
These are rare, life-limiting, progressive genetic conditions caused by a shortage of a particular enzyme. These are multi-organ storage diseases, which cause progressive physical disability and, in many cases, severe neurological deterioration and can result in death in childhood.
The MPS Society’s aims are:
To support families and carers and ensure all individuals with MPS and related diseases have access to best practice in diagnosis, treatment and care.
To fund and promote research into the causes, effects and treatments of these severely life-limiting diseases.
To increase public awareness of these rare conditions and to campaign for change – to improve the lives of children, adults and their families for the future.