We are dedicated to providing information, help and support for patients with Pernicious Anaemia and their families and friends.
We are the only registered charity providing support for patients with Pernicious Anaemia in the world.
Pernicious Anaemia is the largest cause of Vitamin B12 Deficiency. We originally set out to provide patients with a plain English description and explanation of Pernicious Anaemia to newly diagnosed patients. It soon became clear that there were, and still are, serious issues with the way in which Pernicious Anaemia is diagnosed and treated. Misdiagnosis is rife and 14% of our members waited over ten years for a correct explanation of their symptoms. Treatment of the condition is often inadequate causing unnecessary suffering that leads to all manner of problems at home, at work and at school. We want to get the way in which the condition is diagnosed and treated thoroughly reviewed in the light of recent developments. We now have over 6,000 members worldwide