Neuroblastoma is a rare and aggressive childhood cancer affecting children up to the age of about 14 years. About 100 children in the UK are diagnosed each year. We raise funds for medical research into improving both diagnosis and treatment of the disease and also offer an opportunity for parents to give each other mutual help, support and comfort.
Administered by a Board of Trustees made up of lay members who are parents or close relatives of children who have neuroblastoma, and senior medical staff who treat the disease, the Society is run entirely by voluntary effort so costs are kept to a minimum – well over 90% of funds raised being spent directly on helping to fight the disease.
Neuroblastoma is a solid tumour which occurs either in the sympathetic nervous system or closely associated adrenal glands and is usually, although not always, located in the abdomen. Because the symptoms of the disease tend to be varied and vague, some two-thirds of children are not diagnosed until the disease is widespread. Despite intensive courses of chemotherapy and often initial success in treating the disease, the child often relapses, making this one of the most lethal of all childhood cancers.