The Jennifer Trust is a UK charity with 27 years of experience in supporting individuals and families affected by Spinal Muscular Atrophy (SMA). SMA is an inherited neuromuscular condition causing muscle weakness in varying degrees of severity. Type 1 SMA is the most severe and is usually fatal within two years of birth. 1 in 40 of us carry the genetic mutation responsible for SMA resulting in around 100 new cases per year. The Jennifer Trust aim to inform, support and empower families and individuals affected by all types of SMA and raise awareness of the condition. We also fund and support the research community addressing the causes, treatment.