From the start of the pandemic, the ME Association has been building up a library of free information about Covid-19, its impact on people with ME/CFS and the close similarities some types of Long Covid share with ME/CFS.
The soundness of our work in this area has already been recognised at a top level in the UK Government.
Since September last year, we have been represented by our hon medical adviser, Dr Charles Shepherd, on a Ministerial advisory group on Long Covid at the Department for Health and Social Care.
In the meantime, many people with Long Covid have been contacting our ME Connect Helpline and using our Facebook page to try and find out why they’re not getting better.
Most of them had not even been hospitalised by the coronavirus. They stayed at home nursing their symptoms. Some thought they’d actually got better. Then, suddenly, they became floored by a bewildering and bizarre range of new symptoms.
We’re working at every level we can to understand Long Covid better and to support people with the new Post-Covid Fatigue Syndrome.
Our new membership inquiries are running at totally unprecedented levels from people wanting to use our knowledge and experience. They’re saying ‘thank you’ – for just being there for them!
We’re keeping up with the roll-out of the vaccination programme and helping people with ME/CFS establish their vaccine priority level.
To find out more, visit our library of free Covid leaflets here: https://meassociation.org.uk/product-category/covid-19/
To talk to someone, phone our helpline on 0344 576 5326. It’s open every day of the week between these times: 10am-12noon, 2-4pm and 7-9pm.