Spina Bifida, Hydrocephalus, Information, Networking, Equality – SHINE

SHINE is a registered charity, which was formed in 1966, initially to help families and individuals affected by spina bifida and hydrocephalus.
Today SHINE is a community of 75,000 individuals, families and friends, as well as professionals – sharing achievements, challenges and information on living with hydrocephalus or spina bifida, and related issues.
SHINE continues to provide a wide range of services – from direct support and information, to research.  Together we also campaign for equality both directly with local and national government but also through informing our members of surveys and consultations and events they can take part in to ensure their voices are heard.
Working throughout England, Wales and Northern Ireland SHINE can offer help, information and advice on any matter related to the conditions it covers including:

•   Spina Bifida
•   Hydrocephalus
•   NPH (Normal Pressure Hydrocephalus)
•   IH (Intracranial Hypertension – sometimes referred to as BIH)
•   Anencephaly
•   Other NTDs (neural tube defects)

What is spina bifida?
Spina bifida literally means ‘split spine’.  The backbone usually provides a protective tube of bones with the nerves (spinal cord) running down the middle.  In spina bifida a fault in the development of the spinal cord and surrounding bones (vertebrae), before birth, leaves a gap or split in the spine.  The spinal cord has not formed properly, and may also be damaged.
What is hydrocephalus?
Hydrocephalus is caused by a build-up of fluid inside the brain, resulting in increased pressure. Things that may cause hydrocephalus include: premature birth, meningitis, brain haemorrhage (stroke) cysts or tumours. Also most babies born with spina bifida have hydrocephalus.
Hydrocephalus can lead to problems that affect everyday life, such as difficulties with co-ordination, motivation and organisational skills, lack of concentration and problems with short-term memory.